Living With Your NET

Like all cancers, a NET can change your life. It is normal to feel confused, overwhelmed, afraid, and even angry. Your family and friends may feel the same way, too.

Engage your health care team

Knowing whom to go to can help you navigate your journey. If you or a loved one has been diagnosed with a NET, you will likely have multiple HCPs available to help you along the way. Some HCPs who may be part of your health care team include the following:

• Oncologist

• Gastroenterologist

• Surgeon

• Nurse

• Dietitian

• Psychologist/social worker

Continue your daily routine

You may have family members, caregivers, or friends who can be there for you throughout this journey. Don't be afraid to ask them to be part of your support network.

Your loved ones can help:

• Provide emotional support

• Take notes and ask questions at your doctor appointments

• Keep track of your appointments and paperwork

• Drive you to your appointments

• Prepare meals and do the grocery shopping

You may want to let the people in your life know how you feel and what you are going through. Asking them to be more involved can help you continue with your regular routines.

Build a support network

In addition to your family, friends, and caregivers, there are other people like you, including those in groups, who may want to help. There are patient groups for people with all types of NETs. These groups work to improve the lives of people living with NETs through support, awareness, education, research, and advocacy.

Building a support network is a great way to learn about your NET and get more engaged with your care.

You can ask your doctor or nurse for more information about groups in your area.

In order to monitor disease progression, some people who are being treated for NETs may have different tests—often scans. Because of the hard-to-find, slow-growing nature of NETs, testing may be done frequently to try and catch any progression or recurrence as early as possible.

Even if your NET has been surgically removed, your doctor may recommend periodic monitoring.

Keeping track of your test results and your symptoms

Keeping records of your test results over time can help you keep track of your progress both before and after treatment.

Keeping a diary of your symptoms—and your diet—can also be helpful.